Thursday, April 16, 2009

Scottish Rite Appointment

We went to Scottish Rite today to see Eli's hand team. If you don't know anything about Scottish Rite Hospital it is the leader in the treatment of pediatric orthopedic conditions.

We were very excited to go and see what the doctors had to say. We got there and were escorted back to our particular clinic. We waited for awhile for the doctor. It was so amazing to see all of the kids that the hospital was going to help while waiting to see the doctor. We were called back and saw Dr. Oishi. He looked at Eli and immediately knew that he has arthrogryposis which is a condition that includes multiple joint contractures and lack of muscle development. The most commonly affected joints are in the child’s hands, wrists, elbows, shoulders, hips, knees and feet. In Eli's case, it is only his hands and feet. The doctor told us with children who have arthrogryposis it doesn't affect them cognitively. He told us that his prognosis was very good for our little angel. The plan for Eli is do to some stretching with an occupational therapist, then later on do some splinting. He will possibly have a surgery done after he is a year old on his wrists. After Dr. Oishi told us our plan of action for Eli we went to see the occupational therapist who showed us some stretches that we need to do with Eli everyday. We are going to go back in three months to see his progress and see where we need to go from there. We were very encouraged by the whole process and appointment. I would highly recommend Scottish Rite hospital to anyone who may need to use them in the future.

I also wanted to share a picture of the kiddos tonight. Madison didn't go with us to the appointment, so she was so excited to see us and his "brodder". Here is them laying on the pillow together. He loves to hear her voice.

Madison and Eli we are so blessed by you both. You both brighten our days so much. We love you more than you will ever know.

5 comments:

Ashley Smith said...

Praise the Lord...you have an answer and now a plan of action! What a wonderful opportunity you have to work with the best of the best for Eli's care. We will continue to pray you all through this process of growth. Love you bunches. xoxo

Megan said...

I am so glad you guys have a plan! A direction! Things will get better day by day now! Much prayer headed your way!

Jaime said...

It sounds like it went really well, Amanda, and you have a few answers. Yay! We are continually praying!

Bethany said...

That sounds like great news and a wonderful hospital! Glad it was encouraging.

naomi said...

praise God!!! what amazing news...I know it felt so wonderful when dr oishi looked at him and could identify the condition and what a great prognosis! again, your attitude is inspiring to all of us! it would be fun if we could make a roadtrip to scottish rite for a future trip...madison and ashley could play on the outdoor playground together :) love you!